Watch all of the presentations and discussions from our Family & Researcher conference in Boston.

A summary of the RBF Virtual Family Meeting, covering key updates on NARS1 research, clinical progress, and what it means for families.

Watch highlights from the NARS1 Family Meeting, February 2025, bringing together families, clinicians, and researchers to share updates, insights, and experiences from across the community.

Watch our first ever virtual family meeting from April 2024